Monday, May 18, 2009
Monday, May 11, 2009
Well for one thing, my darling little Alan here is not stuck in his "throwing" stage of development. He does not throw every object he can get his hands on. If that were the case, casualties would include his favorite binky, toys, cell phones, remotes, etc that go flying across the room. He does not figure out how to throw items that should be much too big for him. He did not the other day pick up the big metal clamp (that hooks his feed pump to an IV pole) that we never use and instead let him use as a toy to shake and chew, and fling it over his shoulder. We would never leave a non-child approved item on the floor.
Alan has not completely resisted encouragement to crawl, instead opting to do the side scoot. This method of transit would require more of said flinging behavior (that he does not do) because every time he'd see an object of any shape or size in the way, he'd have to fling it out of his way.
I did not learn at an enlightening doctor appointment for myself the other day that my years of sinus and ear infection suffering might be caused by my excessive nose blowing. The doc could not tell simply by viewing my right ear (which was not yet infected from my latest cold but pulling inward) that I'm guilty of blowing my nose frequently and as hard as I possibly can. I learned that my "method" is not the best and can make things worse.
I do not sometimes miss important phone calls or voicemails because I'm trying to avoid talking to the collection agent for a particular health care provider who's bugging me about a bill I've already paid. I'm too assertive and proactive for that.
I did not go through my pictures and realize that I've been a big time slacker on getting any cute (preferably smiling) Alan shots lately. Dad did get this cute one the other day. (And by that I mean he really did. Not another Not)
We do not risk disturbing his peaceful sleep by turning all the lights on to get a good sleeping picture of asleep Alan.
I did not secretly really like getting Mother's Day flowers:
even though I claim not to like flowers and include them in my rant about how gift customs (including wrapping paper, greeting cards, and well.. cut flowers) are expensive social constructs that waste resources. Because I'm not one who always needs something to rant about and can't just go with the flow.
I did not try really hard to get more flower photos, first by posing them with Alan, who wanted nothing to do with them and was batting and kicking the flowers away when I tried to make him hold the boquet.
then by fixing them up in a vase (and by vase I mean Ball jars that we use as makeshift drinking glasses) and putting them on the table (which I made clutter free just for the occasion) next to a swivel photo frame. First with the picture of Alan and I. Then the picture with Rob and I. Then I realized that a picture next to flowers is a little creepy and reminded me of a funeral so I just scrapped the whole thing.
And, ughh.. I'm not a total failure at HTML with this post not at all the way I wanted it to be laid out.
I conclude, off to do far more meaningful and productive things with my time. (yes, that was another Not joke)
Sunday, April 26, 2009
Saturday, April 18, 2009
Then, Alan was in his rambuncious (sp?) playful mood and I made him channel his energy toward some weight bearing in his legs. And...Never mind my unkempt "stuck in a blizzard" appearance. Alan stayed like that leaning (well, leaning a lot) on the couch for at least 30 seconds with most of the weight on his legs. He was shaky but he did it!Go Alan go.
And as soon as we defrost again here - we're going out to play.
Saturday, April 11, 2009
Did you find him?
There he is!
Next, where's binky?
There are eight of them. Gerber apparently decided to discontinue our awesome binky model that Alan uses exclusively. So we had to scoop a bunch up before it was too late. Hopefully those packs will last us until binky-weaning day, an event which will be scheduled at some point a long way away.
Also decided to part with my collection of disposable 8 oz bottles from the hospital. I dumped the whole bin of them and kept 3 for measuring.
Monday, March 30, 2009
Do you see a resemblance?? No it wasn't an actual cheetoh, it was a gerber finger food cheesy flavored whole grain puff. But he put it in his mouth and chewed and swallowed. Later after I thought I cleaned up all the food mess that had been made when I excitedly pulled out little bits of everything I thought he might like, he got a bolus feed. well right toward the end when his tummy was extremely full, he was unsupervised and must have found a cheese puff that I failed to clean up and had already consumed almost the whole thing before I got to him. With the full tummy of formula and all he inevitable hacked up some milk.. but it wasn't all the feed by any means so I was fine with it. Just psyched that he had taken some initiative to eat something again he thought was yummy.
I definitely think this is reinforcement that I agree more with the Graz model of feeding therapy http://www.kinderpsychosomatik.at/home/en/index.php Basically immersing the child in age appropriate feeding opportunities that encourage autonomy and independence vs. the more structured scheduled means of encouraging oral intake.
I think we may have to have a picnic later today!!
If I were rich and Alan were stable, I'd so take him on an Austria vacation to learn to eat.
Well.. backtracking a little. Alan has done well recovering from surgery. He's pretty much back to his old tricks.
After a day or two of freedom, Alan was still a little pale without any O's on, so we made him put the cannula back on on 1/8. Its amazing how much a difference a very small about of O2 can make. Let me tell you, he was thrilled about getting another cannula on.. :(
Thursday, March 26, 2009
Then, Alan got to go to the CPCU. Yay, room 921. It was awesome. He got to see a bunch of old friends and get taken care of by mommy's coworkers who did an awesome job.
Monday, March 23, 2009
Read more at MckMama's blog and check out some photos of this beautiful boy.
Hoping now for him to get out of this SVT spell and stay out and to come up with a plan of care for managing this in the future.
Friday, March 20, 2009
He came up to the CPCU last night. It was a pretty good night, he just woke up hurting once. This morning Alan woke up bright and early to his 730 am cyclosporin lab draw. It turns out that his cyclosporin level was super high so we'll have to do some dose adjusting to get it back down.
And he was really puffy. Probably OD-ed a bit on the fluids. He got a dose of Lasix this afternoon and managed to pee most of it out. He's been weaned from 2 L to 1/2 L and can hopefully wean the rest of the way off the O's tonight now that he's dried up. Started using the G-tube today with some pedialyte and now he's up to 20 mL/ hr of formula, so halfway to his goal feed of 40 which he'll hit at 3am if all goes well.
Alan was pretty irritable today but its definitely improved. He got a sponge bath and put on some cute pj's and has been getting some Tylenol/ codine. I think we're getting close to the smile coming back. He's been up to his usual trouble watching movies and throwing things off the bed like binky and socks and toys.
Better knock on something but we're hoping to get out of here tomorrow morning. Its been a little weird being a patient on the unit where I work but its been good having everyone that knows him and loves him take care of him. We went to a G-tube care class - pretty straightforward stuff. This really looks like its gonna be so much easier. I wish we'd gotten it done sooner!
Thursday, March 19, 2009
Monday, February 23, 2009
Wednesday, February 18, 2009
And it means that I'm back to working tomorrow that I was going to take off.
Take me to where you go when I lie next to you
And watch your eyes close and your mouth form
An involuntary half smile
To this place
Where native hearts beat strong
Babies stay warm at mother’s breast
Grow up quick to run and play
Each full of joy
No clouds, no fear
Is this the place where your angel friends
Beyond the bonds of broken bodies
Held back no more?
And children of famine and war
See that there is more
Than destruction loss and emptiness
In this place, it is always day
Children find their reward
For the innocence
That never went away
Winds are gentle
Playgrounds sprout from tree and grass
Or are your dreams
In a place just as dark as ours?
Is fantasy broken by
Sadistic thought, fear, evil, death
Do the monsters chase you even there?
And is there even a place of peace?
Does it exist?
Even beyond that final and deepest sleep?
Could it be
The only reprieve for all of us
Will only be rest?
Sunday, February 15, 2009
Nothing too exciting going on here. I've got to finish up my homework since this next week is going to be busy. I just did not so awesome on my human development quiz. This time even after doing all the reading in the RIGHT textbook and having the book to reference during the test. Oh well. I work tomorrow so I have to finish everything up today. And.. we'll be parting with some of our baby gear. Giving it to our friends who are expecting. Guess our kid is growing up.