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Do you see a resemblance?? No it wasn't an actual cheetoh, it was a gerber finger food cheesy flavored whole grain puff. But he put it in his mouth and chewed and swallowed. Later after I thought I cleaned up all the food mess that had been made when I excitedly pulled out little bits of everything I thought he might like, he got a bolus feed. well right toward the end when his tummy was extremely full, he was unsupervised and must have found a cheese puff that I failed to clean up and had already consumed almost the whole thing before I got to him. With the full tummy of formula and all he inevitable hacked up some milk.. but it wasn't all the feed by any means so I was fine with it. Just psyched that he had taken some initiative to eat something again he thought was yummy.
I definitely think this is reinforcement that I agree more with the Graz model of feeding therapy http://www.kinderpsychosomatik.at/home/en/index.php Basically immersing the child in age appropriate feeding opportunities that encourage autonomy and independence vs. the more structured scheduled means of encouraging oral intake.
I think we may have to have a picnic later today!!
If I were rich and Alan were stable, I'd so take him on an Austria vacation to learn to eat.
Well.. backtracking a little. Alan has done well recovering from surgery. He's pretty much back to his old tricks.
After a day or two of freedom, Alan was still a little pale without any O's on, so we made him put the cannula back on on 1/8. Its amazing how much a difference a very small about of O2 can make. Let me tell you, he was thrilled about getting another cannula on.. :(
He was a wild crazy trouble maker and figured out how to throw his binky and slippers and toys off the crib onto a ledge of the bed.
The he went back to the OR. Mom and Dad got to go along. Alan laid down and got masked up and went to sleep. It took about an hour total. The procedure involves laproscopically pulling the stomach to the edge of the belly and putting the button in. He did well. Right after he had a little respiratory trouble but it got better with some morphine. His tummy was probably just hurting to much to get good breaths in. Mom and Dad got to see Alan in the PACU. He was still very sleepy.
He spent two nights. His tummy was still very ouchie at first but he got medicine to help. The next day he started feeding on pedialyte then moved up to his new formula Nutren Jr. He started on slow continuous then worked his way up and finally tried some bolus feeds that he kept down great. Saturday night Alan finally went home. His site has leaked a little which hurts but we clean it and put Maalox around the button to protect his skin. The G-tube is awesome. Its very easy to use and its great to get the NG out of the way.
